This time last year, my daughter, three months old, was diagnosed with severe induction neurodeafness. Before the time to appreciate the joy of being a mother, to face and bear such a problem, the mood at that time may only be the same experienced people can understand. Now, a year later, my situation and state of mind have been very different, the baby also made cochlear implants, we are doing our best to rehabilitate her. Now she’s listening well, and she’s said, and I’m sure there will be surprises waiting for us soon. Looking back on this year, there are many to write, but I would like to talk to parents who have just found out that their children have hearing problems, and that my experience and experience may help you.
One
Everything is the best arrangement.
Now you, perhaps as I was, confused, miserable, even desperate. There may be no way to understand why “everything is the best arrangement”. This time last year, I looked at the gray sky, hate the destruction of the earth, so that we disappear together, together to end. I can’t understand why those parents in the group can talk and laugh, in my opinion, this can not be passed for the rest of my life. I took the child with me, i don’t know how many tears. Husband is constantly looking for information on the Internet, with the results of the child’s examination to go to the hospital to find experts, call the cochlear implant company, and even we still hold the child to the rehabilitation center to understand the situation of other children. Because all we see are children in recovery, we are more worried, in the future our children will be the same?
Soon after, I walked into the sunny spring. That day, I saw a little girl in the yard, who was riding a bike with her little friends, laughing and laughing, like a happy angel. I saw at first glance that she was hiding in a beautiful hair card with a double cochlear implant, but it seemed to have no effect on her, and she, like the average child, was integrated into the little partner, playing happily together and talking clearly and smoothly. Later, the little girl’s mother, gave me a book of “the corner of the dragonfly.” Inspired by this book, I am more convinced that my daughter can also have the future and hope as long as I work hard.
Looking back now, I really thank that lively and lovely little girl, she is like an angel, opened a window to the future for us, let us be sure that the daughter can also hear the talk, let us adjust the mentality in time. Only when the mentality is right can we start to really help our children recover. Now I am more convinced that everything is the best arrangement: it is our child that allows me to accompany her more and better, makes me stronger, calmer, happier, and closer to our family.
Two
Timely intervention to close the gap
In the baby more than four months, we know a reliable friend, the baby equipped with hearing aids. Then, at 13 months old, she had cochlear implant surgery. Now the baby’s hearing and language development is very good, I think this is because of the appropriate intervention. In the daughter just diagnosed, I and the child’s father are very entangled, whether to give the baby a hearing aid, when to give the baby the best time to operate. Even later, we wondered whether such a choice would delay the child, because the daughter’s hearing loss is extremely severe. When she was diagnosed with hearing problems in three months, a doctor told us that as soon as possible to do cochlear implants for the baby, do not wear hearing aids, useless, and super-power hearing aids, the baby is not willing to wear. Later, another more authoritative doctor said that the child has residual hearing, can wear a hearing aid, we find someone to test the baby hearing aids. As it turns out, her daughter’s effect on hearing aids is very good, in her more than 9 months, open the mouth into the pediatric period, more than 11 months, she has been able to identify, understand some simple instructions.
Now many parents, especially parents of severe lysing and severehearing disabilities, after discovering that their children have hearing problems, they directly perform cochlear implant surgery on their children, making the children of cochlear implant surgery younger and lighter. In many groups, I often see suggestions that parents of severe, severely impaired children should not be fitted with hearing aids and perform cochlear implant surgery directly. I think of a little friend who had surgery with my daughter, who is also a severely hearing impaired baby with an average hearing range greater than 95Dbhl in his left ear and more severe right ear. Because parents are hearing impaired, so found timely, 6 months in the disability association applied for hearing aids, cochlear surgery when the baby 28 months, hearing aid compensation effect is very good, can understand the daily dialogue and simple oral communication. Because it is the large forecourt water pipe syndrome, so apply to the country after the operation to the baby. So I thought, maybe we might not be so urgent to do cochlear implant surgery for our baby, give your child a little time, and try the effects of hearing aids. This way, if conditioned, three months can give the baby hearing aids, as early as possible to stimulate the baby’s auditory nerve, rebuild the baby’s hearing. If your baby needs cochlear implant surgery, you’re also working on a one-sided double-mode program for your baby.
Of course, there is another extreme now, which is the extreme rejection of cochlear implants, which is now used around the world as a routine way to treat severe and complete deafness.
(Ear tree note: Hearing aids and cochlear implants, for young children, are all about saving language.) There is no right or wrong. For example, in the large forecourt, hearing may end up being completely lost, but it is also good to be able to salvage language well before loss. For children with good language, it’s no excuse to have cochlear implant surgery later. Of course, if the hearing aid is put on, language learning is very hard, you should do cochlear implants as soon as possible. )
Therefore, as a parent, should learn more and ask more questions, as early as possible according to the child’s situation to determine a reasonable treatment plan.
Three
Effective rehabilitation with less effort
When I was holding my 9-month-old baby to rehab, I met a lot of parents and kindly told us that the child was so small that he didn’t need to recover, and it was good to bring it normally. Now, many parents pay more attention to whether their children need to do cochlear implants, whether they should do cochlear implants on both sides, and even feel that the problem is solved after doing cochlear implants. I do not know, the child can not be heard is not equal to listen to clear, listen clearly is not equal to understand, high-quality listening input and effective rehabilitation training, in order to really let the child listen well, let the child into the mainstream society.
When the baby was 9 months old, we went to the first parent-child class, came back to use the teacher’s rehabilitation method, the baby soon began to speak, and suddenly jumped out of three words: a-m, baba, mama. Now boot, the baby adapts to the sound of cochlear implants is also particularly fast, in the listening and saying on the road also the better, the faster, I believe this is the result of our intervention early, but also the teacher’s professional rehabilitation guidance can not be separated, is the professional rehabilitation knowledge let us do more with less
Link:Hearing aids story for my daughter 3 months old
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